Links and
Other Resources
Research Participation and Clinical Trials
Survey conducted by Karen Quandt
Brain and Tissue Bank for Developmental Disorders
Type B Enzyme Replacement Therapy
Zavesca (Type C)
Resources for NPD Families
Family Voices
CaringBridge
Research Centers
University of New Jersey Medical School, Ethnic Database of Jewish Diseases
International Center for Types A & B at Mount Sinai School of Medicine
Laboratory of Dr. Laura Liscum - Niemann-Pick Pages
UCSF/Stanford Univ. Lysosomal Disease Center
Mayo Clinic
Richard Pagano Lab (Mayo)
National Institutes of Health
Search for clinical trials by disease or disorder
Background information on clinical trials
NIH News
NIH National Institute of Neurological Disorders and Stroke (NINDS)
NINDS Home Page
NINDS Grants - Applications and Programs
NIH Office of Rare Diseases
Home Page
Information about clinical trials
Resources for Research on Rare Diseases
National Library of Medicine
Home Page
Niemann-Pick Types A and B (OMIM database)
Niemann-Pick Type C (OMIM database)
Organizations addressing other lysosome storage diseases
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