The NNPDF Equipment

Exchange Program

Introducing ~ Equipment Exchange Program

As NPD patient and family needs change during a chronic illness there may be equipment stored in homes that is no longer needed and could be put to use by another fmaily.  The NNPDF will assist families who wish to donate this equipment.  Our goal is to ensure that all NPD families have access to equipment that they need to assist their loved ones affected by Niemann-Pick Disease.

The foundation will retain and post on the web site a log that describes the type, size and location of available equipment and information about equipment needs. This program is being funded in large part by the Jami and Lisa Chavez family in memory of their daughter, Breann, who passed away from NPD Type C in June 2006, at the age of 3.  Their annual "Ducks for Bucks" event generated the monies to assist in offsetting the cost to ship equipment from home to home.                 (Please see how the program works below.)

Here’s how the program works:

The NNPDF will retain and post on its web site a log that describes the type, size, and location of available equipment and information about equipment needs (names and other identifying information will not be posted on the web site).  In addition, the central office will provide matching services for donated equipment and families who have a need for it.  

Anyone who has equipment to donate to the program, or who has a need for equipment should use the Equipment Donation or Equipment Wish List forms on this site.

For equipment to be donated, fill out the Equipment Donation form and fax or email it to the NNPDF office.  Be sure to provide model numbers, a web link to the product if possible, and any relevant measurements or details so that families will know specifically what is available. Include a digital photograph of the equipment if you have one.  Also, provide information on the condition of the item – use terms such as “new,” “like new,” “gently used,” “used,” “well-used.”  Do not offer items that are heavily soiled or are very worn.  Be sure to provide full contact information so that an NNPDF staff member can contact you if there is question about, or a request for your item. The item will be posted on the link at the top of this page. Posting time will not be limited.  Your contact and other information WILL NOT be posted on the NNPDF web site.

Families who have equipment needs should complete an Equipment Wish List form and fax or email it to the NNPDF office.  Be as specific as possible when describing needed equipment.

The NNPDF will facilitate communication among families donating equipment and families needing equipment when necessary.  We are partnering with local and national distribution services to assist with shipping equipment from and to families at little or no cost.

Call the NNPDF centraol offices at 1-877-287-3672 or send an e-mail to nnpdf@idcnet.com if you have questions about the program or need assistance with donating and/or requesting equipment. 

Completed forms may be faxed to the NNPDF Office at:  920-563-0931.

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