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NNPDF ListServs


NNPDF offers four email lists for use by Niemann-Pick families, friends, caregivers, and other interested parties. The lists are a place where you can share your thoughts, ideas, and challenges with others who have faced Niemann-Pick Disease. Ask questions, raise concerns, express your feelings, or simply listen; the lists are made available to help meet your needs during this journey.

 

Lists run by NNPDF are subject to Guidelines on the use of this service. By joining any list, you agree to abide by the terms of the Guidelines.

 

Type A List.  For friends, families, and others interested in Niemann-Pick Type A.

Join Online        Join By Email         List Home Page

 

Type B List.  For Friends, families, and others interested in Niemann-Pick Type B.

Join Online          Join By Email         List Home Page

 

Type C List.  For Friends, families, and others interested in Niemann-Pick Type C.

Join Online          Join By Email         List Home Page

 

Sibling List.  For children and young adults who have a brother or sister with Niemann-Pick Disease.

Join Online          Join By Email         List Home Page

 

Angels List.  For those who have lost children to Niemann-Pick Diseas.  (This list is NOT run by NNPDF.  It is run by families and care givers).

Join Online          Join By Email         List Home Page

 

Yahoo Groups offers additional features through the Internet, including a Calander of Events, File space for sharing photos, Member profiles, and Internet viewing of messages. You must be registered with Yahoo to use these additional features. To register, go to the Home Page for the list and click on the link for New User. The next time you visit, remember to Sign In with your Yahoo ID to obtain access to the features. Registration is free.

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