NNPDF Family Support and Medical Conference ~ Updated 05/19/2015

23rd Annual NNPDF Family Support and Medical Conference
Thursday, August 6th ~ August 9th, 2015
"The Winds of Hope are on the Horizon...
... for our NPD Community"

2015 Family Conference Recap Page


The National Niemann-Pick Disease Foundation is pleased to invite you to the 23rd Annual NNPDF Family Support and Medical Conference in Chicago, Illinois~Town of Rosemont, August 6 – August 9, 2015, at Loews Chicago O’Hare Hotel. Please mark your calendar and make plans now to join us for this informative family conference!


~2015 Conference Agenda at a Glance~

Cal Important Dates and Deadlines

When: Thursday, August 6th - Sunday, August 9th, 2015
Conference Registration deadline -- June 30th, 2015
Helping Hand Stipend Application deadline -- June 30th, 2015
Hotel Reservation deadline --
July 15th, 2015
First Time Family Fundraiser deadline -- June 30, 2015

Envelope Conference Packet  

Reg Conference
Registration Form


*Read Before Registering Online

Visit the link above to register for the conference online. You can choose multiple tickets if your attendees are a mix of immediate, extended familes as well as NPD affected individuals, children & even volunteer.  You can also choose to pay by credit card upfront, or via check!  We ask only that checks be provided by the time you attend the conference or upon arrival at the registration table.

If you prefer, you can still fill out paper forms. Please complete the registration form and return it with the conference registration fee by Tuesday, June 30th, 2015.  (The conference registration fee is waived for individuals with a diagnosis of NPD and children under 5 years of age)  

     Registration Form (Fillable PDF)     Registration Form (Fillable Word)

Speaker NNPDF

If you have been invited by the NNPDF as speaker, or as a member of the Scientific Advisory Board (SAB) who will be speaking, please fill out the SAB and Speaker form provided below.

SAB/Speaker Form (Fillable PDF)    SAB/Speaker Form (Fillable Word)

Volunteer Volunteer!

Every year, our volunteers play an integral role in making this conference such a valuable (and fun!) experience for families affected by Niemann-Pick Disease.  We appreciate your willingness to give of your time and talents to make this conference a success!

Volunteer Form (Fillable PDF)         Volunteer Form (Fillable Word)

Register Online to Volunteer!
Registration fees still apply to volunteers if immediate family, 5-17 year children, or extended family members.

Hands Helping Hand Stipend

The Helping Hand Stipend is for NNPDF registered families who need financial assistance to be able to attend the Family Conference.  Please apply by June 30th, 2015. The deadline for reimbursements are due by September 15th, 2015.

   Helping Hand Stipend (fill PDF)    Helping Hand Stipend (Fillable Word)

Online Helping Hand Stipend

Loews Hotel Reservations

The Loews Chicago O'Hare Hotel - USE CODE NNP815 -, 5300 North River Road (877-868-9134) Rosemont, IL; has been selected for the 2015 Family Conference. The special conference rate is 129.00 (+ Tax and fees = $122.78).  The NNPDF will provide a subsidized credit of $20.00 per night to be credited upon checkout for a total of $109.00 + 12.64% / $13.78 (tax & fees per night) for a total cost to attendees of $122.78 per night.

The special discount rate is available for the conference and apron dates of Sunday, August 2nd through Tuesday, August 11th (departure on Aug. 12th), based on availability.

*Special Rate Parking: $12.00 per day self parking.

Loews Chicago O'Hare Hotel

Reservation Deadline: July 15th, 2015

Didn't book your hotel room in time to get the NNPDF special conference rate?  Contact the NNPDF Central Office at 920-563-0930 for assistance.

Amenities included in the special NNPDF contracted rate:

  • Discounted breakfast buffet coupon for all overnight guests. You will receive these coupons at check in and must show the server when you are in the restaurant.
  • Complimentary Wi-Fi.
  • Cribs, mini-refrigerators & roll-away beds at no additional cost. Please reserve when you make your reservation. Limited quantity.
  • Complimentary shuttle service to and from O’Hare Airport every 20-30 minutes and within a 5 mile radius of the hotel upon request.

Airport Shuttle Information ~ Loews O'Hare

Loews Chicago O'Hare Floor Plan

h Airline

1. Chicago O'Hare International Airport has free shuttle from airport to the Loews hotel and is about 2.1 miles from the hotel. Driving Directions

Transport Ground Transportation

Transportation to and from hotel

The Loews offers complimentary shuttle service to and from the Chicago O'Hare International Airport every 20-30 minutes.

Airport Shuttle Information ~ Loews O'Hare

Chicago Chicago Tourism Information

To learn about the many exciting attractions and educational opportunities the Rosemont & Chicago areas have to offer, visit the Rosemont Visitors website or the Chicago Visitors Bureau.

Also, check out Chicago Kids website & the Budget Friendly Chicago website for family & budget friendly things to do while visiting the Chicago area!

We also created a quick reference guide "Fun Things to Do in Chicago" to make finding things close to the hotel much easier!

Laurel First-Time Fundraiser Contest

Since 2002, the Foundation has held an annual "First-Time Fundraiser" contest as a way to encourage and recognize families who have taken their first steps in raising funds in support of the Foundation.

The grand prize winner receives a free hotel room for the three nights of the Family Conference. See the below for more information on eligibility.

*If you are in the running for the First-Time Fundraiser Contest, please do not wait to make your hotel reservations -- if you are the contest winner, the NNPDF will cover the room cost for the three nights of the conference. Make your hotel reservations now to avoid disappointment.


Travel Tips

These tips and links to further resources will help you plan your trip well, particularly for family members who have a chronic medical condition. 

Also, visit the Transportation Security Administration's Web site for information including what you can carry onto your flight (prescription medications, oxygen, wheelchairs), etc.

The U.S. Department of Transportation offers this publication titled New Horizons for the Air Traveler with a Disability.


We've compiled this list of FAQs (Frequently Asked Questions) we hope will be helpful to you.  If you have a question we haven't addressed, please don't hesitate to contact us.  We will do all we can to be of assistance as you plan your family's trip to Chicago!  


Plan Your Visit to the Windy City!

Chicago conjures up the well-known term Windy City. The winds off of Lake Michigan are strong at times. With that in mind “The Winds of Hope are on the Horizon….for our NPD Community” makes Chicago a perfect place for our 23rd Annual NNPDF Family Support and Medical Conference. These strong winds remind of our strong NPDF families fighting against NPD.

Chicago has a little something for everyone.  See the links above to start
planning your trip!

The Navy Pier - You can't truly experience Chicago without a trip to the Navy Pier.  This 50 acre playground of entertainment, museums, activities, restaurants, and shops is the perfect place for some family fun time.

Chicago Museums - From the bottom of the sea to the top of the stars, Chicago has it all on display.  Start your adventures on the famous Museum Campus along Lake Michigan.  Three world-renounced museums call it home: The Adler Plantarium & Astronomy MuseumThe Field Museum, and the Shedd Aquarium.

Chicago Shopping - Introducing the Magnificent Mile: This cosmopolitan, history-packed section of Michigan Avenue teems with shopping, dining and entertainment treasures to make any vacation unforgettable.. 

Chicago Dining - Celebrity chefs? Check.  World-renowned restaurants? Check. Ethnic dining from around the globe? Check.  Chicago's dining scene is unparalleled. 

Sports and Recreation - With passionate fans, star players and the historic Wrigley Field, it is no surprise that Sporting News named Chicago the "Best Sport City".  Whether you enjoy golfing, soccer or baseball, Chicago holds something for every sports fan.


Conference Hotel Location
Loews ~ Chicago O'Hare Hotel


Special consideration went into the selection and choice of the Loews Chicago O’Hare Hotel to en-sure that every one of our NNPDF families and guests is able to have a comfortable stay and an op-portunity to experience amenities galore. A cost saving and ease of travel complimentary shuttle to and from the airport is available to our attendees, as is a shuttle from the hotel to within 5 miles of the hotel for a wide-range of shopping and dining choices.


Since 2002, the Foundation has held an annual “First-Time Fundraiser” contest as a way to encourage and recognize families who have taken their first steps in raising funds in support the work of the Foundation.  The grand prize winner receives a free hotel room for the three nights of the Family Conference.

Contest rules are simple:

  • Entrants must be first-time fundraisers.
  • Fundraising results & receipts must be submitted to the NNPDF Central Office by June 30th, 2015.
  • The 2015 contest year runs from July 1, 2014 —June 30, 2015.  (Events must have been held during this time period.)  First-Time Fundraisers may have hosted more than one event during that timeframe, with proceeds from all events in that timeframe counting toward the entrant’s total.
  • NNPDF board members, employees and their relatives are not eligible to participate.
  • The First-Time Fundraiser who raised the most money for NNPDF wins the grand prize three free nights at the Loews for the Family Conference! 

If you believe that your fund raising events and efforts may qualify you to be considered in the 2015 NNPDF Annual First-Time Fundraiser Contest, please be certain to contact the foundation Central Offices to inquire as to your family’s eligibility.  Also, PLEASE do not wait to make your hotel reservations — reserve your hotel reservations now to avoid disappointment in not being able to take advantage of the foundations contracted room rates.  If you are the contest winner, the NNPDF will cover the room cost for the three nights of the conference (August 6th, 7th & 8th, 2015).

Fundraising is vital for moving research forward.  If you have been thinking about fundraising, this is the time to jump in.  The NNPDF offers a Fundraising Packet, a Guide to Getting Media Coverage, and support to help you get started. 

Contact the NNPDF at or 920-563-0930 for more information or assistance.


As we get closer, more information will be released via e-Newsletter, the NNPDF website and social medias.  So keep your eyes on your e-mail, this NNPDF Family Conference page, as well as, the Newsline for the latest updates.

[May 19th, 2015 ~ blg]

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