National Niemann-Pick Disease Foundation

The foundation's 16th Annual Family Support and Medical Conference is being hosted by the

The Greater Atlanta area is full of attractions for all ages. Rising from ashes after it’s Civil War-era torching, this vibrant Peach State capital gracefully blends cosmopolitan sophistication, high energy, and traditional southern hospitality. Cultural and recreational attractions are as diverse as the economy. Atlanta’s bounty of world-class attractions, restaurants and activities stands ready with a warm“Dixieland Delight”welcome to all. We would like to extend an invitation to all of our NPD families, researchers and supporters to join the NNPDF and the King family in Atlanta this summer.

This years conference is at The Georgian Terrace. Since 1911, The Georgian Terrace Hotel has been the venue of choice for Atlanta’s most prominent events, including hosting the world premiere reception for Gone With the Wind in 1939. Listed on the National Register of Historic Places, the hotel has linked its storied past with 307 spacious and elegant suites along with state of the art conference facilities. The hotel offers the latest technology in 16,000 square feet of elegant function space, as well as world-class staff to assist with both business meetings and special social events. The Georgian Terrace Hotel. Historic, yet ahead of its time.

Call 1-800-651-2316 or 1-404-897-1991 between 7:30 a.m. and 7:30 p.m. Monday - Friday.

For those wishing to book their flights early you will fly into Atlanta, Georgia (ATL). We kick off the weekends activities with a welcome reception on Thursday evening (7/31) and wrap-up the conference with a celebration banquet on Saturday evening (8/2).

The NNPDF has contracted with Midwest Express and Delta Airlines (details to follow shortly for Delta) with regards to booking flights under group rate opportunities so that families can realize a 6%-10% discount on their air transportation costs. In light of the recent airline difficulties, the NNPDF strongly suggests that all bookings be paid for via a credit card. If the airline goes out of business, you may then dispute the charge on your account (since you did not receive the contracted services) and receive your monies back. You may also look into travel insurance from your local travel agent or coverage offered by AAA.

If someone does not have travel protection and need to cancel their trip, the airline tickets are good for 1 year from the date of issue . There would be a fee by the airline to do this, in addition, if the new ticket was more money, that would also have to be paid.

The NNPDF has chosen Midwest Airlines as one of our preferred carriers with a 6%-10% discount for our attendees. If you book 60 days out you will receive a 10% discount ~ within 60 days a 6% discount. It is a great airline with lots of amenities and highly rated also.

There are three convenient purchase options for booking your flights on Midwest:

*Online: visit www.midwestairlines.com and type the tour code (below) in the promo box (bonus Midwest Miles offered

* Phone: call Midwest at 800-452-2022 and provide the tour code to the reservations agent

*Travel Agent: purchase ticket(s) through a travel agent, provide them with the tour code information or have them call

The NNPDF Central Office will be sending out additional hotel booking and travel arrangements and opportunities to

families in hard copy registration packets, via the list-serv, and on our web site!

Save the Date Postcard

We are so excited to be hosting this conference and

can't wait to meet y'all surrounded by the southern charm of Atlanta, Georgia!

With excitement,
Your 2008 NNPDF 16th Annual Family Support and Medical Conference Committee

Our "First Time Fundraiser Contest" continues for the 2008 Conference.

The rules are simple:

This must be your first fund raising event for NNPDF
Only events held after June 30, 2007 will be counted
Results and receipts must be turned into the Foundation by July 1, 2008
NNPDF Board members, officers, and their relatives are not eligible

You can hold more than one fundraiser during the year if you wish. Be sure to notify Nadine Hill at the NNPDF Office that you are participating in the First Time Fundraiser Contest so she can track your results.

The rewards of participating are great (even if you aren't the prize winner):

A sense of accomplishment at doing something you may have thought impossible
Moving the fight against Niemann-Pick forward
The top fundraiser will be recognized at the Family Conference and in the Newsletter
The top fundraiser will receive a special prize (to be announced later)

Everyone participating will be" First Timers" - so everyone has an equal chance at being the top fundraiser.

Whether you raise $50 or $5,000, it all helps in the fight against Niemann-Pick.

If you need help getting started, contact Nadine Hill

NNPDF 2008

Family Conference