
		Help
	Site Search by PicoSearch

How We Use Your Support

	Foundation Mission

	Family Services

	Research

	Foundation Financials Forms

Make a Contribution

	Internet

	By Mail

	Planned Giving

Donate Your Time

	Holding a Fund Raiser

	Goods & Services Needed

Fundraising Events

Family Quotes and Testimonials

Request More Information/ Contact Us

Recent Events

(Click here to see upcoming events)

"Dinner and a Show"

Elsie, MI

On March 29th, Tyler's Diner in Elsie, Michigan, held a benefit dinner and show for the National Niemann-Pick Disease Foundation. They enjoyed entertainer Scott Creswell of the OS Entertainment Company as he performed hits from Tim McGraw, Garth Brooks, and Jimmy Buffet. Baked chicken and BBQ ribs were served to those in attendance. Kathy Tyler, grandmother of Tyler, Kathryn, Faith and Serina Heinze, wrote that they had lots of volunteers and the evening went so well! The money raised for NNPDF was $1,685.00.

Dinner and a Show Poster

[April 30, 2008]

Coin Race, William's Birthday Party, and Wal-Mart Support

Benefits Dillon Papier's "Fight For A Cure"

Kindercare-Westview Daycare Center held a coin race raising over $700!

Dillon and Magician William's Birthday Party

In honor of William's 5th birthday, guests gave donations to NNPDF totaling $1,075!

Dillon and his friend William are in the center of the back row in picture on right.

Wal-Mart Check

Check from Wal-Mart to the National Niemann-Pick Disease Foundation for $1,000 in honor of Dillon Papier.

Pictured in the center with the Wal-Mart representatives are Mark and Darrile Papier holding Dillon.

[April 30, 2008]

Saturday Night Fever Disco Dance in Honor of Ty Quandt
**Update**

We are now all discoed out, we've had our "Saturday Night Fever" and we are "Stayin' Alive" with the Bee Gees! What a party! We had 123 items up for bid, a large number of people came to the auction and bid and danced and ate! A lot of people helped put it all together and worked the different areas, such as food and drinks and selling items. Our inspiriation is Ty Quandt, fifth grade student at Mt. View Elementary School in Edgewood, WA. The kids from the school also worked and helped sell items at the dance, and their parents came and bid and bought auction items! The grand total was over $9,028.00 and still growing!!!

The volunteer crew led by Mrs. Kreuger and Cindy Bradeen went above and beyond! Mrs. Kreuger is already planning next year's auction, she has recruited workers from this year for next year and has announced the theme will be "Surfs Up"! Thanks to everyone for coming and bidding and we will see you in your swim gear next year!

Thanks,
Karen and all the Quandts

Disco Dance Poster Ty Quandt

[April 14, 2008]

Karate Belt Pull in Honor of Adam Recke

On January 18th, the Champion Martial Arts Center of West Chester and Downington, Pennsylvania, held a Karate Belt Pull event to raise funds and awareness in honor of Adam Recke. This is a yearly event and in 2008 they raised $742 for the NNPDF. Thanks to Steve Johnson and everyone who supported this fundraiser!

Adam Recke

[April 14, 2008]

Life for Luke ~ 7th Annual Gala

**Update**

Enio and Lucy Liegghio, along with their event committee, have forwarded a copy of a presentation that was developed and made at their event earlier this month. As noted previously, this years gala theme revolved around the mystery of NPC research and accordingly puzzle pieces accompanied this statement:

"YOU are the most important piece to the "Life for Luke Foundation". Help us to solve the mystery of NPC one piece at a time..."

Check out the this link to view this inspirational presentation at: Life for Luke Puzzle Presenation

Luke Liegghio

[March 17, 2008]

Word has trickled down from our friends to the "north" (Canada ~ that is!!) that the 7th Annual Life for Luke Foundation Charity Dinner Gala and Silent Auction was, yet again, another HUGE success.

Enio and Lucy Liegghio, along with their event committee, somehow manage to pull together unique and successful events year after year. In reality, we know that it is through countless hours of volunteer time, talent, sweat equity and PERSEVERANCE.

This years gala theme revolved around the mystery of NPC research and accordingly puzzle pieces accompanied this statement:
"YOU are the most important piece to the "Life for Luke Foundation". Help us to solve the mystery of NPC one piece at a time..."

Check out the "Life for Luke Foundation" home page at: http://www.lifeforluke.com/gala2008.htm

This year, proceeds from their event are being sent to Sick Kids Foundation of Toronto Canada and the Canadian Chapter of the NNPDF. Tammy Vaughan and her family were able to attend the Gala on Saturday night and was "blown away" by the number of attendees, as well as, the number of beautiful and exquisite auction items and the unique take on the evening's meals and entertainment.

The NNPDF would like to take a moment to add a note of thanks to the Liegghio family and their supporters for the work that they are doing in memory of Luke Daniel Liegghio (NPC: 05/05/97 ~ 06/10/05) and their continued support of research into NPC.

Luke's Dad, Enio, penned this poem for his precious son which encompasses so much for so many:

Do not cry for me as I am not here...
The sun is my smile,
The stars are my eyes,
The wind is my touch,
The rainbow is my endless love for you.

Words of thanks may be sent directly to the Liegghio web site at: info@lifeforluke.com.