Upcoming Fundraising Events
(Click here to see recent events)
The Addi and Cassi Fund Presents:
Moonlight Garden Gala
May 10, 2008
Downtown Reno Ballroom
Please join us for a star-filled night to help find a cure to “Childhood Alzheimer’s” (Niemann-Pick Type C), a rare, progressive and fatal neurological disease that is robbing children of all ages around the world of their ability to walk, talk, or even remember the name of their favorite stuffed animal.
The Moonlight Garden Gala at the new downtown Reno Ballroom on Saturday, May 10, 2008 will be a mystical evening of hope, wonder and childhood dreams as we honor four-year-olds Addi and Cassi Hempel and children all over the world who suffer from “Childhood Alzheimer’s” (NP-C). Our guests will be treated to an elegant evening with a celebrity performance, silent and live auctions, uplifting music and an enchanting atmosphere as we transform the ballroom into a beautiful moonlit garden, designed in the spirit of a child’s imagination, with tree-lined paths, twinkle lights, fireflies and a fountain of wishes. This will be a very special evening where friends, family, honored guests and local dignitaries will have an opportunity to mingle, share ideas and help save children’s lives.
For more information visit www.addiandcassi.com.
[April 29, 2008]
"Life for Brooke" Spaghetti Dinner
May 18, 2008
1:00 - 7:00 PM
St. Philip Neri Church
8200 N. 30th Street
Omaha, Nebraska
We are the parents of an adorable seven year old little girl named Brooke. Her life and ours was forever changed over five years ago, when she was diagnosed with Niemann-Pick Type C, a very rare genetic/metabolic disorder. This fatal disorder causes a build-up of cholesterol in the blood and brain which causes neurological developmental delays and eventually death.
On Sunday, May 18, 2008, we will be hosting a Spaghetti Dinner at St. Philip Neri Church. The cost of dinner is $8 per person, $15 per couple, and $5 for ages 10 and under. We are seeking sponsors for the event as well as donations for silent auctions. Sponsors may donate monies for supplies or may donate product or services. Any support will be greatly appreciated. We want your company to receive the justifiable appreciation and advertising it deserves. Your company name will be included on our display of thanks and included with any donated item or services.
Contact D.J. or Vicki Thomas with any questions at vickithomas@tconl.com.
[April 29, 2008]
Baysox Benefit for Dillon Papier
May 18, 2008
2:05 PM
Prince George's Stadium
4101 N.E. Crain Highway (Route 301 South)
Bowie, Maryland
The proceeds will benefit Type C research for THE NATIONAL NIEMANN-PICK FOUNDATION.
For tickets contact Maris Walker at 301-464-8935 or 301-529-6481 or Marisw43@yahoo.com Tickets are $14.00 (50% Tax deductible)
Prince George's Stadium - 4101 N.E. Crain Highway (Route 301 South), Bowie, MD 20716
Baysox website: http://www.baysox.com
[April 29, 2008]
1st Annual Ryan Richardson Memorial Ride/Poker Run
May 31, 2008
Crestview, Florida
The family of Ryan Richardson are hosting their 1st Annual Event in his memory benefiting the National Niemann-Pick Disease Foundation in Crestview, Fl. They will have a battle of the bands, food, auctions and lots of fun. If you are in the area please come.
[April 29, 2008]
Tastefully Simple Fundraiser in Memory of Bryanna Desouza
June 1st - June 15th
Hi families,
I just wanted to mention I will be starting a new fundraiser in memory of my Bryanna and in honor of our NNPDF children and families for the period of June 1st - June 15th. It is an "online catalog party" for Tastefully Simple Products. I have attended a party in person and the products are easy mixes that just need 1 or 2 ingredients added. Example - Beer Bread mixes, garlic and onion and other seasonings, muffin mixes, dip mixes, and more. The consultant and company will give me 20% total less the small credit card processing fees for all sales between June 1st - June 15th under the special link that they have set up for me. I am now adding people to invite on my link. If anyone would like to be invited to this on line catalog party (NO Obligation to buy, but can look to see if you are interested in purchasing), I will add your names to my list in the link for this fundraiser. Anyone in the USA can be included since their shipping is domestically only. If you would like to check out the web site on www.Tastefullysimple.com for a preview of their products and recipe ideas, please do.
Anyone interested in being invited (even if you do not end up ordering), please email back to me at
Judy.Desouza@BICworld.com or email the following information to the listserv:
Your first and last name and your email
address. I will send out the invitation electronically on May 30th. Thanks for your help!
I already have about 40 people and still adding.
Judy Desouza
mom of Bryanna (1-20-92 to 12-05-06)
Connecticut
[April 29, 2008]
Willow Wicks Fundraiser Candles
Lisa Chavez of New Mexico and mom to Breann who passed away in 2006 at age 3 from NPC, has hand-crafted candles for sale.
For more information on how to order a candle seen below, visit www.willowwicks.com or mail in the order form with payment.
Proceeds from this candle go to the National Niemann-Pick Disease Foundation.
This foundation's goals are to promote research into a cure for NPD, along with connecting families who are struggling with this rare disease, helping alleviate feelings of isolation and despair.
item # cost size
FR-NF $20.00 16oz. - soy
scent - creamsickle
Picture of Breann relying on the help of her mom and dad to take a few steps.
Proceeds from this candle go to Ducks for Bucks, a fundraiser that was created in memory of Breann Chavez and her love for her ducks. Ducks for Bucks raises money for Niemann-Pick families. Money is given directly to the families so that they may use it in the way that will best help them at the time. It is the goal of Ducks for Bucks to help give a little extra money to these families who have no extra time. For more information on Ducks for Bucks call 505-632-7649
Item # cost size
FR-DD $20.00 16oz. - soy
scent - creamsickle
Picture is of Breann sitting by the pond with her ducks.
[April 29, 2008]
5K Race/Walk for a Cure
In honor of Adam Recke
JUNE 14, 2008, 10:00 a.m.
Lehigh Parkway
Allentown, PA
The 2008 Race has been scheduled for June 14, 2008 at 10:00 AM at the beautiful Lehigh Parkway. There will be the following at the event: 5K Competitive Run, 3K or 5K Fun Walk, Basket Raffle, Live Music by Vinyl Diner, Children's entertainment, and free food and beverages.
[April 29, 2008]
2008 Lee King Benefit Bass Tournament
Saturday, June 14, 2008
Lakepoint State Park -
Lake Eufaula
Eufaula, Alabama
Team Entry Fee - $110 + $5.50 Credit Card Fee =$115.50
Fee Includes Big Fish
To enter online click here or for more information visit www.leekingbenefit.org.
[April 29, 2008]
Tomorrow's Hope Walk Fest
"Because I Love You"
JUNE 20-21, 2008
Jefferson High School
Jefferson, WI
In honor of all members of the NNPDF.
[April 29, 2008]
6th Annual Alex and Laura Vaughan Memorial Golf Tournament
JUNE 21, 2008
Stone Tree Golf Course
Owen Sound, Canada
2008 will mark the 16th anniversary since we lost our precious son Alex to Niemann-Pick Disease at the age of 4 years, 8 months and the 7th anniversary of the death of our sweet little princess Laura at the age of 6 years 10 months. As many of you know, we – Tammy, Allan and Michael – are dedicating our lives to helping other families that are dealing with Niemann-Pick Disease. It is our goal and dream to have no other family go through the life altering, devastating experience of losing their precious son or daughter, brother or sister. Through our efforts and the generous donations from the terrific businesses throughout Ontario and most importantly from you, our family and friends, we are making a difference. In the 5 years that we have held the tournament we are very proud to say that we have been able to contribute over $100,000 to research to find a treatment and cure for this life stealing disease.
Hundreds of thousands of dollars are spent each year for research on Niemann-Pick Disease. The current scientific environment of Niemann-Pick Disease has seen a change in emphasis from a basic research priority to one of translational research and emerging clinical research. In order to support these advances in research new tools are required; better animal models; international patient registries; natural history studies; newborn screening; carrier screening. That’s why your support is so vitally important to our fight!
Once again this year we are appealing to you, our friends and family, to support us in our fight. Attached you will find entry forms for the tournament if you would like to participate. We would also appreciate your support by sponsoring a hole, donating a prize for the raffle or making a monetary donation. Click here for a registration form.
For more information or to see pictures of last year's event, go to Canadian Fundraiser Events.
[April 29, 2008]
Golf "Fore" Stacey Memorial Golf Classic
JUNE 28, 2008
Spring Creek Golf Center
Cold Spring, WI
Cost of $35 per person includes golf, food, door prizes, flag prizes.
All proceeds will be donated to the National Niemann-Pick Disease Foundation to fund research.
Special Silent Auction featuring unique sports memorabilia, great ticket packages, vacation get-a-ways, and much, much, more. Everyone is welcome to come in, view or place a bid. Bidding will close at approximately 4:30 p.m.
Please join us for this special event in memory of Stacey Vorpahl, a 19-year-old Fort Atkinson girl, who died after a courageous battle with Niemann-Pick Type C Disease. Stacey touched many people in her short life, motivating her parents to join with others to establish the National Niemann-Pick Disease Foundation bringing together families around the world suffering from this rare disorder, offering hope for a cure.
Golf Registration Information 2008
Map to Golf Course
[April 29, 2008]
Erin Roberts Memorial
Hanover 5-K Road Race & Walk
JUNE 28, 2008
9:00 a.m.
St. Mary's Church
Route 139
Hanover, Mass.
The finish line will be at Hanover Town Hall. There will be t-shirts for anyone pre-registered by June 5th but anyone can register on the day of the event. Entry fee is $15. Medals are awarded to the top three male and female finisher in each age group. To participate, fill out the Erin Roberts Race Form. For more information call 781-826-1300 or email bcassidy@heathtrax.net.
[April 29, 2008]
Sunday, June 29th, 2008
1:00 - 5:00 pm Rain or Shine
Goss Field House, Chase Collegiate School
565 Chase Parkway, Waterbury, CT
Event Schedule
Registration: 1:00 - 2:00 pm
Opening Remarks: 2:00 - 2:30 pm
Walk/Post Walk Picnic: 2:30 - 5:00 pm
All participants receive a t-shirt and goody-bag, food and water is provided for all walkers with prizes awarded to individual walker and team with largest donations. There will be live entertainment during pre/post walk times and a raffle for restaurant gift certificates and other prizes. All proceeds will benefit the NNPDF. Please fill out the registration form to sign up for this event. For more information please contact Gianni Perugini (203)558-8769 or perugini17@sbcglobal.net.
[April 29, 2008]
Frederick Keys Benefit for Dillon Papier
When: Coming in mid-July (TBA).
Where: From Washington, DC: I-270 North to Frederick, MD. Exit 32 - Route 70 East to Baltimore. Exit 54 from Route 70 East. Turn right at second light onto Market Street Take second left onto Stadium Drive Parking lot and stadium's main gates are on your left.
Frederick Keys website: http://www.frederickkeys.com
[April 29, 2008]
Fourth Annual "Nate's Promise For A Cure" Golf Tournament
Friday, July 20th, 2008
Saddleback Golf Club
Firestone, CO
Registration: 11:30 am
Shotgun Start: 1:00 pm
Awards and Dinner to Follow
Nate and his family need your continued support.
For more information on how to register, visit www.natespromiseforacure.com.
[April 29, 2008]
Second Annual Dillon Papier Charity Golf Tournament
Friday, September 5, 2008
Hollow Creek Golf Course
Middletown, MD
Registration begins at 9:00 a.m. and tee-off is at 10:30 a.m. The registration fee is $150 per golfer, which includes food and drinks. Raffles and other competition offerings will be held. Following the tournament, a silent auction and dinner will take place in the Hollow Creek Club House from 5:00-8:00 p.m. www.dillonsfight.org
To sign up for the tournament, you can view registration information at dillonevents.
With your donation, you will receive a window decal so that Dillon’s Army will recognize your business as a proud sponsor of Dillon’s cause. Thank you in advance for your support and providing the greatest gift of all – The Gift of Hope.
For more information please contact Michael Hayden at 240-463-0928 or email at mbh512@comcast.net.
[April 29, 2008]
Please check back later for more details and updates for 2008!
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