NNPDF Promotional Products Available
Great fundraising items
or thank you gifts for volunteers!
Upcoming Fundraising and Awareness Events
Dear NNPDF Families and Friends,
The entire Niemann-Pick Disease type C community has been offered an unparalleled opportunity to raise $100,000 towards NPC research, but it will only happen if YOU take action and encourage others to do the same. It's easy! Vote once a day online between now and March 15th to push the Trent and Julie Smith Family Foundation "BReaK Thru Fund" for NPC research to the finish line and the top prize of $100,000! (Three of the Smith family children have been diagnosed with Niemann-Pick Disease type C ~ Braden, Riley and Keaton ~ thus BReaK-Thru Fund.)
This on-line voting contest is sponsored by, The Infiniti Coaches Charity Challenge, in for ten (10) weeks, the nation’s top coaches will be counting on fans like you to vote for their favorite charity. Vote for your coach’s favorite charity. Help increase their chances by sharing with your friends. The coaches receiving the most votes gain a spot in the finals, with the winning coach receiving $100,000 toward his charity (each coach will get at least $1,000 for his favorite cause). So start voting now!
Matt Painter, Purdue University Coach and the Smith Family BReaK Thru Fund are working together with the NPC community to vote Matt Painter into the final round! With your help, NPC research WILL garner $100,000, but only if you vote daily! We CAN do this if everyone gets behind this project.
The first round of voting opened on January 5th, 2015 and continues through January 25th, 2015 when 24 Coaches out of the initial 48 will advance to round two of four total. Vote daily for Matt Painter to ensure he makes it to the final round!
Share this with your families, share this with your friends and encourage them to do the same.
Alone we are rare, but together we are strong!
[Jan 22nd, 2015 ~ blg ~ UPDATED 03/04/2015]
Yankee Candle Fundraiser ~ In Memory of Bryanna Desouza
March 12th- June 31st, 2015
~ONLINE & Local Fundraiser~
Bryanna Desouza (NPC)
Jan 20, 1992 ~ Dec 5, 2006
Judy Desouza is once again holding a Yankee Candle fundraiser in Memory of her daughter, Bryanna (NPC), both local AND online! Now you can be anywhere in the US and still participate by ordering the world's best loved candle!
Many of us already buy these long lasting candles, so why not purchase them to benefit the NNPDF? With over 50 scents and new ones being created each year you are sure to find one that is perfect for you! Give them as a gift, or purchase one for yourself to indulge in these wonderful scents.
Judy, in working with Yankee Candles, has dedicated 40% of profits for both local and online orders to come to the NNPDF, with shipping being either:
- $5.99 shipping flat fee for orders under $100.00
- Free shipping on orders over $100.00
Online orders can ship direct to anywhere in the USA!
The online store is officially Online!
- Visit www.yankeecandlefundraising.com
- Enter Group # 99832018
- Click "Start Shopping" to begin!
Judy's in person, local ordering will start on March 12th-March 27th, 2015 if you don't want to purchase online and are local to Naugatuck, Connecticut.
[Jan 24th, 2015 ~ UPDATED: Mar 3rd, 2015 ~blg]
Caleb Woodard Charity Hocky-thon
In Honor of Caleb Woodard (NPC)
April 4th, 2015
The Garden's Ice House ~ Laurel, MD
The Woodard family out of Maryland is holding their first fundraiser in honor of their son, Caleb Woodard, who was diagnosed with Niemann-Pick Disease type C in 2013.
This event, the Caleb Woodard Charity Hocky-thon, will feature 12 one hour ice hockey games at The Gardens Ice House in Laurel, MD. The money raised on their GoFundMe page will cover base costs so team fees and donations collected at the event will be directly donated to the NNPDF for NPC research.
Let's show our support and welcome this family into our community!
[Mar 4th, 2015 ~ blg]
~On hiatus till further notice~
We are excited to announce that
has proudly joined the ranks of Dillon’s Army!
Beginning on Monday, June 2nd, and continuing on THE FIRST MONDAY OF EACH MONTH until the end of the year, Foster’s Grille, located at 8925 Fingerboard Road in Turning Point Center, will donate 25% of all sales proceeds to the National Niemann-Pick Disease Foundation. Furthermore, Foster’s will match any amount raised through your patronage.
The NNPDF, a national 501(c)(3) non-profit, works to support and promote research to find treatments and a cure for Niemann-Pick Disease (NPD). As a rare orphan disease with fewer than 500 diagnosed cases in the US, funding on a national level is slim, and families are left with few options for their children. The families of the NNPDF in a true “grass-roots effort” have taken on the challenge head-on and work diligently to raise funds to assist with the support of this vital and potentially life-saving research.
Please plan on joining your friends and neighbors on Mondays at Foster’s Grille.
Never doubt how your small gesture can make a big difference to the Papier family and others with children living with this horrible disease. Every dollar raised brings new hope!
[May 27, 2008]
Lisa Chavez of New Mexico and mom to Breann
who passed away in 2006
at age 3 from NPC, has hand-crafted candles for sale.
Proceeds from this candle go to the National Niemann-Pick Disease Foundation.
This foundation's goals are to promote
research into a cure for NPD, along with connecting families who are struggling
with this rare disease, helping alleviate feelings of isolation and despair.
item # cost size
FR-NF $20.00 16oz. - soy
scent - creamsicle
Picture of Breann relying on the help of her mom and dad to take a few steps.
Proceeds from this candle go to Ducks
for Bucks, a fundraiser that was created in memory of Breann Chavez and
her love for her ducks. Ducks for Bucks raises money for
Niemann-Pick families. Money is given directly to the families so
that they may use it in the way that will best help them at the time. It
is the goal of Ducks for Bucks to help give a little extra money to these
families who have no extra time. For more information on Ducks for
Bucks call 505-632-7649
Item # cost size
FR-DD $20.00 16oz. - soy
scent - creamsicle
Picture is of Breann sitting by the pond with her ducks.
[April 29, 2008]
Kids Behavior Control Exercise (KBCE)
Sales to Benefit NNPDF
The Kids Behavior Control Exercise system was designed by Vander Braflat to provide parents with a means of constructive discipline and behavior modification. Proceeds from the sale of the KBCE will benefit the NNPDF in memory of Vander's daughter, Bryanna DeSouza, who passed away in 2006, at the age of 14, from the effects of Niemann-Pick Disease Type C.
To learn more about the KBCE or to place an order, please visit www.sweetdiscipline.com .
[Mar 17, 2011 mem]