NNPDF Promotional Products Available
Great fundraising items
or thank you gifts for volunteers!
Upcoming Fundraising and Awareness Events
5th Annual Ryde 4 Tylor
Saturday, September 6th, 2014, Noon
The 5th Annual Ryde 4 Tylor will be held on Saturday, September 6th, departing from Knickers Saloon, Dubuque, Iowa, at 12:00 noon, sharp. The ride is scheduled in memory of Tylor White-Richardson (09/11/1996 ~ 12/12/2013)
All proceeds will go to the NNPDF to benefit NPC research in Tylor's memory. Come show your support in our quest for a cure!
[August 29th, 2014 ~ blg]
Family Fun Day / Thunder for a Cause
Saturday, September 6th, 2014
Dexter American Legion
Kathy Lane and her family are holding a family fun day to help raise funds and awareness for Niemann-Pick Disease Type B!
The fundraiser will include a raffle, face painting, dunking booth, cake walk and much more! Come show your support if you are in the Dexter, New York area!
[August 29th, 2014 ~ blg]
8th Annual Dillon Papier Charity Golf Tournament, Dinner and Silent Auction
Hollow Creek Golf Club, Middletown, MD
Friday, September 26th, 2014
This year's annual Dillon Papier Charity Golf Tournament is scheduled for Friday, September 26th, 2014. Registration will begin at 9:00 a.m., with a shotgun start at 10:30.
This is a 4-person scramble format tournament, with prizes for closest to the pin, longest drive, etc., plus raffles, gift bags, and other prize opportunities.
The event will be held at Hollow Creek Golf Club, 50 Glenbrook Drive, Middletown, MD, 21769; Tele: 301-371-0400. Visit www.hollowcreekgolfclub.com.
Lunch will be provided, along with water, soda and beer all day. Dinner and a silent auction will begin immediately after.
Sponsorships are available at several levels. Please contact Mike Hayden for details.
This event benefits the National Niemann-Pick Disease Foundation, and our Quest for a Cure!
Thank you for your continued support!
[May 9th, 2014 ~ blg]
Savor the Flavor - BBQ Fundraiser for Dillon Papier
Saturday, October 18th 2014 at 4:00pm
Mt. Airy, MD
If you are in the Mt. Airy, MD area on Saturday, October 8th, come out and show your support as Gary Irwin and Tim Mengel use the opening of their new business, "Atlantic Smokers Catering" to help raise funds and awareness in honor of Dillon Papier (NPC).
They will have a DJ on site, along with games, gift raffles and excellent barbeque for the entire family! Cost is $20 per person (children 10 and under are free) and they have pledged 100% proceeds will be donated to the NNPDF!
[Sep 19th, 2014 ~ blg]
~On hiatus till further notice~
We are excited to announce that
has proudly joined the ranks of Dillon’s Army!
Beginning on Monday, June 2nd, and continuing on THE FIRST MONDAY OF EACH MONTH until the end of the year, Foster’s Grille, located at 8925 Fingerboard Road in Turning Point Center, will donate 25% of all sales proceeds to the National Niemann-Pick Disease Foundation. Furthermore, Foster’s will match any amount raised through your patronage.
The NNPDF, a national 501(c)(3) non-profit, works to support and promote research to find treatments and a cure for Niemann-Pick Disease (NPD). As a rare orphan disease with fewer than 500 diagnosed cases in the US, funding on a national level is slim, and families are left with few options for their children. The families of the NNPDF in a true “grass-roots effort” have taken on the challenge head-on and work diligently to raise funds to assist with the support of this vital and potentially life-saving research.
Please plan on joining your friends and neighbors on Mondays at Foster’s Grille.
Never doubt how your small gesture can make a big difference to the Papier family and others with children living with this horrible disease. Every dollar raised brings new hope!
[May 27, 2008]
Lisa Chavez of New Mexico and mom to Breann
who passed away in 2006
at age 3 from NPC, has hand-crafted candles for sale.
Proceeds from this candle go to the National Niemann-Pick Disease Foundation.
This foundation's goals are to promote
research into a cure for NPD, along with connecting families who are struggling
with this rare disease, helping alleviate feelings of isolation and despair.
item # cost size
FR-NF $20.00 16oz. - soy
scent - creamsicle
Picture of Breann relying on the help of her mom and dad to take a few steps.
Proceeds from this candle go to Ducks
for Bucks, a fundraiser that was created in memory of Breann Chavez and
her love for her ducks. Ducks for Bucks raises money for
Niemann-Pick families. Money is given directly to the families so
that they may use it in the way that will best help them at the time. It
is the goal of Ducks for Bucks to help give a little extra money to these
families who have no extra time. For more information on Ducks for
Bucks call 505-632-7649
Item # cost size
FR-DD $20.00 16oz. - soy
scent - creamsicle
Picture is of Breann sitting by the pond with her ducks.
[April 29, 2008]
Kids Behavior Control Exercise (KBCE)
Sales to Benefit NNPDF
The Kids Behavior Control Exercise system was designed by Vander Braflat to provide parents with a means of constructive discipline and behavior modification. Proceeds from the sale of the KBCE will benefit the NNPDF in memory of Vander's daughter, Bryanna DeSouza, who passed away in 2006, at the age of 14, from the effects of Niemann-Pick Disease Type C.
To learn more about the KBCE or to place an order, please visit www.sweetdiscipline.com .
[Mar 17, 2011 mem]