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NNPDF Current Fundraising and NPD Awareness Events

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Fundraising and NPD Awareness Updates


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When your family and friends reach out to you and ask, “What can we do to help you and your family as you face this diagnosis?,” the foundation has just the recipe for you to pass along to these supportive and generous individuals! 

The NNPDF “Recipes for Success” Cards are a great way to help you to choose a fundraiser that is just right for you!  Better yet, the NNPDF staff will be able to help you with the process and have specific event sponsors/mentors which we can connect you to who have held similar event(s) on behalf of the NNPDF and had overwhelming success. 

This week’s “Recipes for Success” card that we wish to highlight and draw your attention to is hosting an “Art Night”.  An “Art Night” if a fun way to allow your creative side to make an appearance!  Music, food, and drinks along with an opportunity to create that once in a lifetime masterpiece, combined with the fun and fellowship of friends will ensure a night filled with laughter and memories!  An art night doesn’t have to be for adults only!  Kids can have their own “Art Night” and have fun painting and raising money too!

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The NNPDF “Recipes for Success” Cards will give you all the ingredients (supplies) and directions (instructions) needed to help you have a successful event.  The NNPDF “Recipe Cards” also provide you with “quick tips” addressing advertising content, Press Release assistance and  timelines, PLUS helpful hints to ensure you “get the word” out into your community. WAIT….there is more….should you still need suggestions or support ~ Chris Klauer, at the NNPDF Central Office is simply an e-mail or phone call away to answer any questions that you may have!

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Persevere Wristbands

Remember last week we introduced you to the Road ID items that you could purchase? 



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We talked about how you can add your loved ones name to the band to wear on your Persevere Wristband.  The NNPDF office just received a *new* batch of Persevere Wristbands.  There is no better way to raise awareness than by wearing your Persevere Wristband. 
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The Persevere Wristbands are available for $1.00 each and you can order as many as you want.  We have them in for both youth and adult. 

Having a fundraiser?  Why not purchase some to sell at the fundraiser!  Everyone loves to have these! 

Just go to NNPDF Products Order Form to order your posters, wristbands and brochures!

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Don’t forget that the NNPDF posts all of the upcoming fundraiser’s and awareness campaigns that we are made aware of ~ find a full list here:

Current NNPDF Fundraisers and NPD Awareness Events

This week we would like to highlight the next event happening on Saturday, August 1, 2015 to benefit the NNPDF!

  • 10th Annual Ride for Adam ~ For more information contact Carol Laub at 610-760-2832 or 610-417-5012

The NNPDF Fundraising Services Plan outlines how the foundation staff can support you further in your efforts as well.  You can locate it by clicking on:

Fundraising Services Plan

As always, please don’t forget to contact the NNPDF central offices if you are hosting an event that either raises funds in support of  the NNPDF or provides awareness for Niemann-Pick Disease!  Contact Chris Klauer, Family Services and Marketing Coordinator at: nnpdf@nnpdf.org, she will be happy to assist you with events and activities! 

[Jul 27th, 2015 ~ blg]

 

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Dateline: 07/20/2015

Do you have friends and family that are asking how they can help raise awareness or funds in honor of your loved one who has been diagnosed with NPD?  The NNPDF has just the recipe to help them!

The NNPDF “Recipes for Success” Cards are a great way to help you to choose a fundraiser that is just right for you!  Better yet, the NNPDF staff will be able to help you with the process and have specific event sponsors we can connect you with who have held similar event(s) on behalf of the NNPDF and had overwhelming success. 

fThis week’s “Recipes for Success” card that we wish to highlight and draw your attention to is hosting a “Golf Outing”.  A “Golf Outing” to benefit the programs of the NNPDF is a GREAT way to get outside, get some exercise, all while involving your friends, neighbors and community in support of your event ~ and ~ having FUN to boot!  Your “Golf Outing” can be as big or as little as you want.  You can easily include raffle items, auction items and door prizes with your “Golf Outing” or simply choose one area to focus upon. The best aspect is that YOU can create your “Golf Outing” into whatever you want.

The NNPDF “Recipes for Success” Cards will give you all the ingredients (supplies) and directions (instructions) needed to help you have a successful event.  The NNPDF “Recipe Cards” also provide you with “quick tips” addressing advertising content, Press Release assistance and  timelines, PLUS helpful hints to ensure you “get the word” out into your community. WAIT….there is more….should you still need suggestions or support ~ Chris Klauer, at the NNPDF Central Office is simply an e-mail or phone call away to answer any questions that you may have!

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Road ID in Support of NNPDF

The NNPDF is now an affiliate of Road ID.  Road ID is a company that allows its users to wear a bracelet that will speak for you in case of an accident.  They not only carry bracelets but also various other accessories and apparel.  Many of the items here are geared specifically towards runners, bikers, devoted atheletes, etc.


https://www.roadid.com/imagesV3/Retail/IDs/Flex/Product/RoadID_Flex_product.png
NPD Families have the opportunity to order a metal wrap band to use with the NNPDF “Persevere” wrist-bands that are engraved with your loved ones name upon it.  See the Chavez family example at left with Breann’s name added.  Follow this link to order these types of slim badge engraved wraps: 

https://www.roadid.com/builder/Badge/Default.aspx?styleid=226

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However, the NNPDF feels that these “Road ID” bracelets would also be great for our family membership ~ especially our NPD patients who may wander off or have specific health needs that MUST be addressed should a parent or guardian not be in attendance at a time of crisis!

IMPORTANT NOTE on how to obtain a 20% coupon ~ July 20th thru August 24th, 2015!

Click Road ID for more information on how to get a 20% coupon for any items at Road ID starting 7/20/2015 until 8/24/2015.  The NNPDF will receive a 10% commission from every item sold!  Do you have a Fitbit?  You can also order a Road ID faceplate to add to your Fitbit with all of your information on it.

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Do you wish to raise awareness in the community with posters that speak to the heart of the foundations efforts on behalf of your loved one faced with the heartbreaking diagnosis of NPD?  If you are interested in utilizing posters to advertise and/or educate community members or attendees at an event, then the NNPDF Central Office can be of assistance!  The foundation has four different posters available to all of our family membership for a nominal cost plus shipping (h24” X w18”). 

 

fThis week we turn the spotlight to the NNPDF poster titled: “If it were true, we wouldn’t be calling you.” poster. The theme of this poster, see example below, focuses on the age-old adage that “An apple a day will keep the doctor away!”  Sadly, as we all know only too well, simply home remedies and cures go only so far when dealing with the ravages of Niemann-Pick Disease!  Our community must rely on the support and generosity of others to financial support us all as we work to find a cure! 

It’s easy to place your order for the NPD Awareness Posters, NNPDF Informational Brochures, Newsletters and Persevere Wristbands from the Central Office.  Just click here for the form:

NNPDF Products Order Form

 

As always, if you have any questions or wish to talk through the options simply drop off an e-mail to Chris Klauer at nnpdf@nnpdf.org  or call her at:  1-877-287-3672.

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Don’t forget that the NNPDF posts all of the upcoming fundraiser’s and awareness campaigns that we are made aware of ~ find a full list here:

Current NNPDF Fundraisers and NPD Awareness Events

This week we would like to highlight two events taking place this Saturday, July 25, 2015 to benefit the programs of the NNPDF!

The NNPDF Fundraising Services Plan outlines how the foundation staff can support you further in your efforts as well.  You can locate it by clicking on:

Fundraising Services Plan

Don’t forget, if you are hosting an event that either raises funds for the NNPDF or provides awareness for Niemann-Pick Disease, please contact Chris Klauer, Family Services and Marketing Coordinator at:  nnpdf@nnpdf.org so that she can assist you with events and activities! 

[July 20th, 2015 ~ blg]

 

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Dateline: 07/13/2015

Do you have friends and family that are asking how they can help raise awareness or funds in honor of your loved one that has been diagnosed with NPD?  The NNPDF has just the recipe for them!

The NNPDF “Recipes for Success” Cards are a great way to help you pick the fundraiser that is just right for you!  Better yet, the NNPDF staff are able to help you with the process and have specific event sponsors to connect you with who have held similar event(s) on behalf of the NNPDF and had overwhelming success. 

Click here to view the Recipes for Success Cards!

This week’s “Recipes for Success” card that we wish to highlight and draw your attention to is a Children’s Carnival.  This is a fun event to do either at the end of the school year, during the summer or at the beginning of the school year!  Everyone loves to play games and win prizes plus who doesn’t love a cake walk.  This is an event that your neighborhood can really rally around your family and offer their support!

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The NNPDF “Recipes for Success” Cards will give you all the ingredients (supplies) and directions (instructions) needed to help you have a successful event.  The “Recipe Cards” also provide you with “quick tips” addressing advertising content, PR timelines and helpful hints to ensure you “get the word” out in your community. WAIT ~ there is more ~ should you still need suggestions or support ~ Chris Klauer, at the NNPDF Central Office is simply an e-mail or phone call away to answer any questions that you may have!

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Niemann-Pick Disease Pandora-esque Beads

Do you have a Pandora bracelet or one that is similar to it?  If so this bead is just the one to add to your collection.  Not only will it add some color and beauty to your bracelet but it will help raise awareness for Niemann-Pick Disease.  The bead will fit Pandora, Chamilia, Biagi, Troll, and most European Bracelets.  

Pandora


Click NNPDF Bead for the form to order your opportunity to raise funds to support research!



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kDo you wish to raise awareness in the community with posters that speak to the heart of the foundations efforts on behalf of your loved one faced with the heartbreaking diagnosis of NPD?  If you are interested in utilizing posters to advertise and/or educate community members or attendees at an event, then the NNPDF Central Office can be of assistance!  The foundation has four different posters available to all of our family membership for a nominal cost plus shipping (h24” X w18”). 

This week we turn the spotlight to the NNPDF poster titled: “They have only their childhood to experience a lifetime” poster. You may have seen this poster recently on other NPDF Family Facebook posts.  It is one that really hits home, tugs at the heartstrings with the reality our families face and targets directly to others of how serious this rare disease is!  The generous support of others will help us find that cure!   


It’s easy to place your order for the NPD Awareness Posters, NNPDF Informational Brochures, Newsletters and Persevere Wristbands from the Central Office.  Just click here for the form:

NNPDF Products Order Form

As always, if you have any questions or wish to talk through the options simply drop off an e-mail to Chris Klauer at nnpdf@nnpdf.org  or call her at:  1-877-287-3672.

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Don’t forget that the NNPDF posts all of the upcoming fundraiser’s and awareness campaigns that we are made aware of ~ find a full list here:

Current NNPDF Fundraisers and NPD Awareness Events

Just a reminder that the following NNPDF Fundraising and NPD Awareness Events are happening this weekend. If you can support them it would be greatly appreciated!

 

This event is happening on Saturday, July 18, 2015! Please check the event Facebook for more information. 

This event is happening on Sunday, July 19th, 2015!  Please check out the flyer for more information:

The NNPDF Fundraising Services Plan outlines how the foundation staff can support you further in your efforts as well.  You can locate it by clicking on:

Fundraising Services Plan

Don’t forget, if you are hosting an event that either raises funds for the NNPDF or provides awareness for Niemann-Pick Disease, please contact Chris Klauer, Family Services and Marketing Coordinator at:  nnpdf@nnpdf.org so that she can assist you with events and activities! 

[Jul 13th, 2015 ~ blg]

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Dateline: 07/06/2015

Do you have friends and family that are asking how they can help raise awareness or funds in honor of your loved one that has been diagnosed with NPD?  The NNPDF has just the recipe for them!

The NNPDF “Recipes for Success” Cards are a great way to help you pick the fundraiser that is just right for you and links you back to a sponsor at the foundation who held a similar event and had success.

DesouzaOne fundraising idea highlighted in the “Recipes for Success” cards this week is a Home Party!  This event will gather friends together for a night of fun!  You decide on which vendor your friends would love to purchase items from and ask if they would be willing to donate a percentage of their sales to the NNPDF in honor of your loved one facing the challenges of Niemann-Pick Disease.  Gather up some friends and some snacks and have a blast!

Judy Desouza, has held an annual Yankee Candle Fundraiser in memory of her daughter Bryanna and in support of the NNPDF for a number of years now.  She not only does it as a local fundraiser but also as an online fundraiser!  Families of the foundation look for news of her annual event and purchase items in support of her efforts!  You too can join the fun!

The NNPDF “Recipes for Success” Cards will give you all the ingredients (supplies) and directions (instructions) needed to help you have a successful event.  The “Recipe Cards” also provide you with “quick tips” addressing advertising content, PR timelines and helpful hints to ensure you get the word your community. WAIT ~ there is more ~ should you still need suggestions or support ~ Chris Klauer, at the NNPDF Central Office is simply an e-mail or phone call away to answer any questions that you may have!

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Support NNPDF and Be Brave!

These bracelets are a great way to support the NNPDF.  Did you know that the NNPDF receives $10 for every piece of jewelry that is purchased? 

https://www.bravelets.com/img/jewelry/rosa-bracelet/violet/1/1380x880.jpgNew items have been recently added to the NNPDF Bravelet catalog.  You can view them all at: https://www.bravelets.com/bravepage/becky-s-niemann-pick-awareness-party.  There are great choices for men, women and children. 

In the coming weeks we will be highlighting some other options of bracelets that you can also purchase to provide support and awareness for NPD families!

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ggWish to raise awareness in the community with posters that speak to the heart of the foundations efforts on behalf of your loved one faced with the heartbreaking diagnosis of NPD?  If you are interested in utilizing posters to advertise and/or educate community members or attendees at an event, then the NNPDF Central Office can be of assistance!  The foundation has four different posters available to all of our family membership for a nominal cost plus shipping (h24” X w18”). http://www.nnpdf.org/aboutus_19.html#Posters

This week we turn the spotlight to the NNPDF poster titled: “It’s rare…It’s Genetic…It’s Fatal” poster. This poster reminds others that this rare disease needs research to find the cure.  The generous support of others will help us find that cure!   

You can order these posters, NNPDF Informational Brochures, Newsletters and Persevere Wristbands from the Central Office.  Just use this Order Form and you will be all set for your event.

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Don’t forget that the NNPDF posts all of the upcoming fundraiser’s and awareness campaigns that we are made aware of ~ find a full list here: http://www.nnpdf.org/donorinfo_13.html.  The NNPDF Fundraising Services Plan outlines how the foundation staff can support you further in your efforts as well.

Don’t forget, if you are hosting an event that either raises funds for the NNPDF or provides awareness for Niemann-Pick Disease, please contact Chris Klauer, Family Services and Marketing Coordinator at:  nnpdf@nnpdf.org so that she can assist you with events and activities!  

[Jul 6th, 2015 ~ nmh]

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Dateline: 06/29/2015

Have you been thinking about hosting a fundraiser to benefit the National Niemann-Pick Disease Foundation and raise awareness of Niemann-Pick Disease? Not certain where to start or how best to get your idea off of the ground?  The NNPDF CENTRAL OFFICES ~ is here to help you with ideas, resources and support! 

The “NNPDF Fundraising Packet” is a unique guide developed to support our Niemann-Pick Disease Family Community to assist you in getting started and walks you through to the completion of your fundraiser or awareness event.

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The NNPDF “Recipes for Success” Cards are a great way to help you pick the fundraiser that is just right for you and links you back to a sponsor at the foundation who held a similar event and had success.

One fundraising idea highlighted in the “Recipes for Success” cards is an event that will serve a double purpose and help to clean out your house at the same time!  If that peeks your interest, then a “Garage Sale Fundraiser” is the event for you!

The NNPDF “Recipes for Success” Cards will give you all the ingredients (supplies) and directions (instructions) needed to help you have a successful event.  The “Recipe Cards” also provide you with “quick tips” addressing advertising content, PR timelines and helpful hints to ensure you get the word your community. WAIT ~ there is more ~ should you still need suggestions or support ~ Chris Klauer, at the NNPDF Central Office is simply an e-mail or phone call away to answer any questions that you may have!

Remember….not only do you clean out your house, basement and garage but you also raise money and awareness in honor of the loved one in your family living with Niemann-Pick Disease.



Wish to raise awareness in the community with posters that speak to the heart of the foundations efforts on behalf of your loved one faced with the heartbreaking diagnosis of NPD?  If you are interested in utilizing posters to advertise and/or educate community members or attendees at an event, then the NNPDF Central Office can be of assistance!  The foundation has four different posters available to all of our family membership for a nominal cost plus shipping (h24” X w18”). Click here for the order form

This week we turn the spotlight on the “Research Is Our Only Hope” poster. This poster highlights the many faces of our NPD children and young adults bravely taking on the challenges of NPD day-after-day! 

You can order these posters, NNPDF Informational Brochures, Newsletters and Persevere Wristbands from the Central Office.  Just use this this form and you will be all set for your event.

 

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Don’t forget that the upcoming fundraiser’s that the NNPDF Central Office is aware of are located here http://www.nnpdf.org/donorinfo_13.html#Current.  The NNPDF Fundraising Services Plan outlines how the foundation can support you further in your efforts as well.

Don’t forget, if you are hosting an event that either raises funds for the NNPDF or provides awareness for Niemann-Pick Disease, please contact Chris Klauer, Family Services and Marketing Coordinator at:  nnpdf@nnpdf.org so that she can assist you with events and activities! 

[June 29th, 2015 ~ blg]

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Fundraising and NPD Awareness Updates
Dateline: 06/22/2015
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August of 2015 will mark the 13th year that the National Niemann-Pick Disease Foundation (NNPDF) has held an annual “First-Time Fundraiser” contest.  This annual contest serves as a way to encourage and recognize families who have taken their first steps towards raising funds in support of the programs and services provided by the National NPD Foundation. 

The grand prize winner of the annual contest receives a complimentary hotel room for the three nights of the annual Family Conference ~ Thursday, Friday and Saturday!  This year to be held in Chicago, Illinois!

Contest rules are simple:

  • Entrants must be first-time fundraisers with proceeds being raised on behalf of the NNPDF.
  • Fundraising results & receipts must be submitted to the NNPDF Central Office by June 30th, 2015.
  • The 2015 contest year runs from July 1, 2014 —June 30, 2015.  (Events must have been held during this time period.)  First-Time Fundraiser Family Participants (ie: entrant) may have hosted more than one event during that timeframe, with proceeds from all events in that timeframe being forwarded to the NNPDF and counting toward the entrant’s total.
  • NNPDF board members and employees, as well as their relatives are not eligible to participate.
  • The First-Time Fundraiser who raised the most money for NNPDF wins the grand prize three complimentary nights at the Loews Chicago O’Hare Hotel for the 2015 23rd Annual Family Support and Medical Conference! 

If you believe that your fund raising events and efforts may qualify you to be considered in the 2015 NNPDF Annual First-Time Fundraiser Contest, please be certain to contact the foundation Central Offices to inquire as to your family’s eligibility.  Also, PLEASE do not wait to make your hotel reservations — reserve your hotel reservations now to avoid disappointment in not being able to take advantage of the foundations contracted room rates.  If you are the contest winner, the NNPDF will cover the room cost for the three nights of the conference (August 6th, 7th & 8th, 2015).

Fundraising is vital for moving research forward.  If you have been thinking about fundraising, this is the time to jump in.  The NNPDF offers a Fundraising Packet, a Guide to Getting Media Coverage, and “Recipe for Success Cards” to help you get started plus personal Central Office staff support and planning assistance from start to end.

Please contact Chris Klauer, Family Services & Marketing Coordinator at nnpdf@nnpdf.org or call the Central Offices at:  920-563-0930 for more information or assistance.


On May 17, 2015 the 3rd Annual “Walk for Kailey Florkiewicz” occurred in Griffith, Indiana in honor of Kailey (NPC ~ age 11 years).  This exciting event was, once again, a huge success and was capped off by Kailey’s sister, Kenzie, singing the National Anthem!  The rain held off and great fun was had by all.  The NNPDF is grateful to the Florkiewicz family and their supporters in choosing the foundation as the recipient of the event proceeds!  Heartfelt Thanks!   

Interested in hosting a “Run/Walk” event of your own to benefit the NNPDF but don’t know HOW or WHERE to begin?  Simply contact the NNPDF Central Offices ~ we have a “how to” “Recipe for Success” fundraising tool PLUS “one-on-one” staff assistance to address your questions and help to get your event moving forward towards certain success!

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Last week the Central Office Staff highlighted all of the upcoming fundraiser’s slated to be held this summer that we are aware of:  http://www.nnpdf.org/donorinfo_13.html

If you are you hosting an event that either raises funds for the NNPDF or provides awareness into Niemann-Pick Disease, please contact Chris Klauer, Family Services and Marketing Coordinator at:  nnpdf@nnpdf.org so that she can assist you with events and activities! 

[Jun 22nd, 2015 ~ blg]

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Dateline: 06/15/2015

"Alone We Can Do So Little; Together We Can Do So Much"
~ Helen Keller

It takes more than one person to raise funds…

 

Here at the NNPDF we appreciate all of those that are working together raising funds to help support our programs and promote research to find a cure for all of those affected by NPD.

 

Below are the fundraisers that the NNPDF is aware of that you might be able to take part in. Together we can do so much!

Don’t forget you can also help raise money for the NNPDF by going to the NNPDF Store at http://www.nnpdf.org/store.html.

The NNPDF recently developed a Fundraising and NPD Awareness Services Plan. You can find it a thttp://www.nnpdf.org/documents/FundraisingServicesPlan.pdf. Chris Klauer, Family Services and Marketing Coordinator will be happy to talk you through your fundraising event and assist you with NNPDF resources. Please contact her at nnpdf@nnpdf.org!

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[Jun 15th, 2015 ~ blg]


Current NNPDF Fundraisers and NPD Awareness Events



8th Annual Riley's Run ~ Memorial Ride and Poker Run
Saturday, July 25th, 2015 | 10:00 am
Woodville Elementary School
Woodville, AL

Riley
Riley Corbitt (NPC) 
7/27/02 - 10/29/08

The 8th Annual Riley's Run will be held on Saturday, July 25th, to raise awareness into Niemann-Pick Disease and funding for research.  Riley's Run is held by the American Cruisers Chapter 45 in memory of little Riley Corbitt, who passed away from the effects of Niemann-Pick Disease Type C in 2008, at the age of five.

In addition to the poker run, the event features an auction, door prizes and a live band and pizza at the end of the ride.  All proceeds benefit the NNPDF in Riley's memory.

[Jul 16th, 2015 ~ blg]

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3rd Annual Golf for Garrett
Saturday, July 25th, 2015 | 7:30am & 1:00pm Tee Times
Lander Golf Course
Lander, WY

G4G

Come join the Hopkin family & friends for their annual Golf 4 Garrett fundraiser!  Courtney & Justin Hopkin are holding the event in honor of their son, Garrett (NPA/B).

This is a 4-person scramble format tournament that includes team & hole prizes, as well as, dinner and a silent auction. All proceeds from the fundraiser will come to the NNPDF to support ASMD research through the Foundation.

To register for the event, visit the Golf 4 Garrett website, and feel free to like the fundraiser on Facebook.

[Jun 30th, 2015 ~ blg]

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10th Annual Ride for Adam
Saturday, August 1st, 2015 | 10:00am
Schnecksville, PA
Flier

The 10th Annual Ride for Adam and Family Picnic will be held on Saturday, August 1st, 2015at the Schnecksville Fire Company Pavilion, 4550 Old Packhouse Road, Schnecksville, PA.  The day will include great entertainment and fun for the entire family, with proceeds benefiting the NNPDF and Support of Accelerated Research (SOAR)  in honor of Adam Recke (NPC). 

Registration for the non-stop poker ride begins at 10:00 a.m., with the ride taking off at noon.  The picnic will be from 2:00 - 8:00 p.m., with live entertainment during the same hours.  The event includes Basket raffles, 50/50 raffles, hamburgers, hot dogs, beverages and more will be available. 

Tickets for the event are $25.00, with children 15 and under attending free.   Flyer/poster   

[June 4th, 2015 ~ blg]

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9th Annual Dillon Papier Charity Golf Tournament, Dinner and Silent Auction
PB Dye Golf Club ~ Ijamsville, MD 21754 
Friday, September 18th, 2015

Dillon
Dillon Papier (NPC)

This year's annual Dillon Papier Charity Golf Tournament is scheduled for Friday, September 18th, 2015.  Registration will begin at 9:00am, with a shotgun start at 10:00am. 

This is a 4-person scramble format tournament, with prizes for closest to the pin, longest drive, etc., plus raffles, gift bags, and other prize opportunities. 

The event will be held at PB Dye Golf Club, 9526 Doctor Perry Road, Ijamsville, MD, 21754; Tele: 301-607-4653.  Visit www.pbdyegolf.com.

Lunch will be provided, along with water, soda and beer all day.  Dinner and a silent auction will begin immediately after. 

Sponsorships are available at several levels.  Please contact Mike Hayden for details.

This event benefits the National Niemann-Pick Disease Foundation, and our Quest for a Cure!

Details and registration forms are available here.

Thank you for your continued support!

[May 20th, 2015 ~ blg]

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Willow Wicks Candles

Breann
Breann Chavez (NPC)
02/10/2003 - 07/08/2006

Lisa Chavez of New Mexico and Mom to Breann (who passed away in 2006 at age 3 from NPC), hand-crafts the special PERSEVERE candles to benefit the NNPDF. Each Turley Tot Candles has a different picture of a precious moment captured with a pleasant scent to complement. 

$10 of every candle from the Turley Tot Collection will go to the National Niemann-Pick Disease Foundation in a fight to one day cure Niemann-Pick Disease.

Click here to view the Turley Tot Collection and view other candles made with love by Lisa Chavez

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~On hiatus till further notice~

Dillon's Fight

Frederick, Maryland

We are excited to announce that

Foster's Grille

has proudly joined the ranks of Dillon’s Army!

Beginning on Monday, June 2nd, and continuing on THE FIRST MONDAY OF EACH MONTH until the end of the year, Foster’s Grille, located at 8925 Fingerboard Road in Turning Point Center, will donate 25% of all sales proceeds to the National Niemann-Pick Disease Foundation. Furthermore, Foster’s will match any amount raised through your patronage. 

The NNPDF, a national 501(c)(3) non-profit, works to support  and promote research to find treatments and a cure for Niemann-Pick Disease (NPD).  As a rare orphan disease with fewer than 500 diagnosed cases in the US, funding on a national level is slim, and families are left with few options for their children.  The families of the NNPDF in a true “grass-roots effort” have taken on the challenge head-on and work diligently to raise funds to assist with the support of this vital and potentially life-saving research.

Please plan on joining your friends and neighbors on Mondays at Foster’s Grille.

Never doubt how your small gesture can make a big difference to the Papier family and others with children living with this horrible disease.  Every dollar raised brings new hope!  

[May 27, 2008]


2014 October Awareness Month events and activities

Recent fundraising and awareness events hosted by families and friends