Mission & GoalsThe National Niemann-Pick Disease Foundation is a non-profit [501(c)(3)] organization that supports and promotes research to find a cure or treatments for all types of Niemann-Pick Disease and provides support services to individuals and families affected by the disease.
NNPDF's VISION is a world where Niemann-Pick disease is no longer a threat to a full and productive life for patients and their families. Medical professionals, thoroughly familiar with the disease, will promptly and accurately diagnose it early in the patient's life, and then prescribe an appropriate therapy. Families affected by Niemann-Pick disease will not be devastated by the diagnosis or its impact on their lives. Individuals with Niemann-Pick disease will have the same chance as their siblings and peers to run and play, to hope and achieve, and to live out their dreams.
National Niemann-Pick Disease Foundation
Feature Article in Lysosomal Disease Network's Indications Newsletter
With the coming of Rare Disease Day 2015, the National Niemann-Pick Disease Foundation and its community are taking the time to reflect on our long history of Perseverance and all the things we've been able to accomplish with the continued support of families and friends over the years.
The NNPDF was lucky enough to be featured in a recent issue of the Lysosomal Disease Network (LDN) monthly online newsletter, “INDICATIONS”. This detailed history covers the work of the Foundation as a it relates to who we are, what we do and just how far we have come since the foundation was established in 1992!
The article was written by Evelyn Redtree, writer & editor of the LDN 'Indications' newsletter. Evelyn interviewed key NNPDF staff, Board of Director's, researchers and scientists to create a complete history behind the foundation, the research goals you, our community, have helped us reach!
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Message From the Chair Meet the NNPDF Board
[June 28th, 2013 blg]