NNPDF Store
NNPDF Awareness Items
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Please read this message from NNPDF mom Lorna Tyrrell, regarding her popular PERSEVERE Wear line of clothing and accessories: Dear NPD family, After careful consideration, I have decided to cut back on my time spent taking care of PERSEVERE Wear orders. Over the last few months Naomi has required more and more physical time and energy, as well as my other children needing me-- and I've realized that I just can't keep up. I created the PERSEVERE t-shirts and hoodies with the hope of spreading awareness of Niemann-Pick Disease, as well as offering support to the other families who are making efforts with fundraisers, etc. And I am still committed to that. I will still be willing to provide families with shirts and hoodies in bulk (25 items or more), so if you need anything for a fundraiser, or want to get a group of families together to order, please email me and I'll be glad to get those for you. I will also still have items available at the NNPDF Family Conference. Thank you, Lorna |
Available now, in plenty of time for holiday gift-giving! These very special 2011 wall calendars are dedicated to the children and families who face the challenges of Niemann-Pick Disease. Order directly from the calendar's creator, Lorna Tyrrell, mom of Naomi Tyrrell (NPC). |
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Treasuring Each Day: This calendar, full of playful puppies and sayings of hope and inspiration, is dedicated to all those affected by Niemann-Pick Disease. |
Love Always Hopes This labor of love is the passion of New England artist Don Greer. It is a collection of his daughter's favorite works, compiled in honor of his granddaughter's fight against Niemann-Pick Disease Type C (NPC). |
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Bryan and Laura Hadley offer handy "Persevere" cell phone holsters/pouches embossed with an inspirational message. Visit www.orcacellular.com "Support the Cause" to order. Contact the Hadleys for pricing if you are interested in selling the pouches as part of a fundraiser for NNPDF.
NEW -- Vinyl Banners -- These heavyweight, quality banners are wonderful for fundraising or awareness-raising events. One of our member families makes these customized banners, and they make a donation to the NNPDF for each banner produced. Contact the NNPDF at nnpdf@nnpdf.org for more information.
Don't leave home without your periwinkle "Persevere" wristbands to show your support for those with Niemann-Pick Disease! You will also want to check out our NNPDF Family Cookbooks, full of unique recipes from our member families. Wristbands and cookbooks are available from the NNPDF office.
Need a little inspiration? We have the "Until Then" CD with the song inspired by Lee King and written and performed by Twice Robin. (order form)
The NPD Persevere pin (shown enlarged, below) makes a nice gift for family and friends who support our quest for a cure.
Each pin is approximately 1 and1/4 inch wide and 3/4 inch high, and is high-quality enamel over a white-gold-look background. Colorful yet tasteful, it brightens any lapel, collar or hat while conveying our message that we will Persevere against NPD.
We also have several informative videos about Niemann-Pick Disease available. (order form)
Customizable press release Check out this sample press release. We can help you tailor a press release if you need assistance publicizing your awareness or fundraising event. If you need assistance writing a press release, please complete this press release information form and return it to the NNPDF Central Office.
Scroll down to find more items to help with your fundraising event or public awareness campaign. These items were originally created by members and supporters and donated to the Foundation.
Items provided by the Foundation are free of charge. However, a donation is requested to offset the cost of this service.
To order, print out and complete this order form, and send it with your payment to:
NNPDF
P.O. Box 49
Fort Atkinson, WI 53538
Contact the NNPDF with any questions:
1-877-287-3672
nnpdf@nnpdf.org
Items marked ** are sold by third parties with proceeds benefitting the NNPDF. Sales tax and/or shipping and handling charges may apply. (For items marked **, order directly from the third party listed)
Item Order Form for Most Items Below |
Recommended Donation/Ordering Info |
| Persevere Wristbands -- Adult size or Youth size Periwinkle blue rubber wristband |
$1 each |
| Persevere Pins (click here for picture) Gold pin with multi-color logo and "Persevere" |
$5 each |
| Cell Phone Holsters/Pouches ** "PERSEVERE Blessed is the man who perseveres under trial. James 1:12" |
Order by visiting www.orcacellular.com (Support the Cause page) or by calling 1-800-992-5526. Offered by Bryan and Laura Hadley www.hadleyhope.com |
| Generations of Great Cooking ** Recipes from NNPDF member families |
$5 each |
| "Until Then" CD Song inspired by Lee King, written and performed by Twice Robin. |
$5 each |
| NNPDF Brochures Overview of Niemann-Pick Disease and the Foundation's work. |
Free |
| NNPDF Newsletters (most recent issue) |
Free |
| Videos --
Ryan's Story, Learning about NPD, A Physician Talks About NPD (3 segments all on one DVD or VHS tape) |
$5 each |
| Truck Campaign A silk screen design for the back of large trucks as part of the public awareness campaign. |
Contact NNPDF for more details. |
All logos are copyrighted or are registered trademarks of the respective company.
The National Niemann-Pick Disease Foundation does not endorse or warrant these companies and products. This page is presented for informational purposes only.
The Foundation is an associate of Amazon.com and receives a commission on all sales made through the Amazon.com links.
Shop Here and Benefit the NNPDF
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[Updated Dec 13, 2011 mem]