Memorial Poems
In Loving Memory
of
Caroline Jeanne Kirk (NPB) 9/7/98 -10/30/07
| THE SITTING TIME by Joe Digman Don’t listen to the foolish unbelievers who say forget. Take up your armful of roses and remember them the flower and the fragrance. When you go home to do your sitting in the corner by the clock and sip your rosethorn tea It will warm your face and fingers and burn the bottom of your belly. But as her gone-ness piles in white, crystal drifts, It will be the blossom of her moment the warmth on your belly, the tiny fingers unfolding, the new face you’ve always known, That has changed you. Take her moment, and hold it As every mother does. She will always be your daughter And when the sitting is done you’ll find bitter grief could never poison the sweetness of her time. |
[Oct 16, 2009 mem]
In Loving Memory of Twins
Eugene Dixon (NPA) 1/4/73 - 1/19/77
and
Maxine Dixon (NPA) 1/4/73 - 5/3/76
Remember me
Because today I am free
I am no longer sick or ill
I am free
Remember me
I hope I touched your hearts
And though we are now far apart
Please remember me
I fought as hard as I could
But knew I could not win
And the day came I had to give in
If you could see me now
I am free
I can run, I can laugh
I can dance, I can sing
My wings are filled with glitter
My legs run so fast
I hold you all in my heart
Don't cry for me
I am free
We will meet again
And until we do
Please remember me!!
Submitted by John and Geniel Dixon in memory of their beloved children.
[Aug 6, 2009 mem]
In Loving Memory of
Jeffrey Dean Baker (NPC)
April 5, 1964 - October 21, 2008
I'd like the memory of me
to be a happy one,
I'd like to leave an afterglow
of smiles when life is done.
I'd like to leave an echo
whispering softly down the ways,
of happy times and laughing times
and bright and sunny days.
I'd like the tears of those who grieve,
to dry before the sun.
Of happy memories that I leave
when life is done.
[July 14, 2009 mem]
A Prayer for One Who Grieves
(received with the gift of a special shawl)
As you move through these long days, may you be blessed
through the
Wearing of this shawl, and carried by God who loves you so much.
May those around you comfort you - may their love soothe your broken heart,
May their care ease your pain, may their steadfast presence remind you
that
In your grief and in your loss you do not mourn alone.
May your tears be healing, may your aching heart be eased by the solace
of our God,
and may the waves of pain be stilled by the prayers of those who love you.
May you gently wrap this shawl around you, may you be surrounded by its
love,
enfolded by its prayer, embraced by its warmth, and cradled in the womb
of its softness.
Amen
Submitted by Karen Quandt
[April 14, 2009 mem]
To All Parents
by Edgar Guest
"I'll lend you a little time a child of mine," He
said.
"For you to love the while he lives and mourn when he is dead,
It may be six or seven years, or twenty-two or three,
But will you, 'til I call him back, take care of him for me?"
"He'll bring his charms to gladden you, but should his stay be brief,
You'll have his lovely memories as solace for your grief.
I cannot promise he will stay, since all from earth return,
But there are lessons taught down there I want this child to learn."
"I've looked the wide world over in my search for teachers true,
And from the throngs that crowd life's lanes I have selected you.
Now will you give him all your love, nor think the labor vain,
Nor hate me when I come to call to take him back again?"
I fancied that I heard them say: "Dear Lord, Thy will be done!
For all the joy Thy child shall bring, the risk of grief we'll run.
We'll shelter him with tenderness; we'll love him while we may,
And for happiness we've known forever grateful stay."
"But should the angels call for him much sooner than we'd planned,
We'll brave the bitter grief that comes and try to understand."
Submitted by Karen Quandt
[April 14, 2009 mem]
Through The Mist Of Time
When you allow the pain to ease
And let go of the grief
Then you will be able
To feel my peace
Through the Mist of Time.
When you release your wanting and wishing
For things that might have been, should have been
Then you will be able
To hear my voice
Through the Mist of Time.
When you realise the loving part you had to play
In setting my Soul free
Then you will be able
To see, I am always here
Through the Mist of Time.
Submitted by Susan Green
[April 6, 2009 mem]
Hello Everyone,
I wanted to share this poem with all of the Niemann Pick families that
have lost a child over the years. My daughter Riley had a very special
friend who was her aid. Talona lost Riley and both of her parents within
5 months. Yet she sent this to me with a photo of her parents and Riley
on the top of the page...
"WE'RE SPENDING CHRISTMAS WITH JESUS THIS YEAR"
We see the countless Christmas trees around the world below.
With tiny lights, like heaven's stars, reflecting on the snow.
The sight is so spectacular, please wipe away that tear; For we're
spending Christmas with Jesus Christ this year.
We hear the many Christmas songs that people hold so dear.
But the sounds of music can't compare with the Christmas choir up here.
We have no words to tell you the joy their voices bring.
For it is beyond description to hear the angels sing.
We know how much you miss us, we see the pain inside your heart.
But we're not so far away, we really aren't apart.
We cannot tell you of the splendor or the peace inside this place Can
you imagine Christmas with our Savior, face to face?
We will ask him to light your spirit as we tell him of your love.
So then pray for one another as you lift your eyes above.
So be happy for us, dear ones, you know we hold you dear.
And be glad we're spending Christmas with Jesus Christ this year.
We sent you each a special gift, from our heavenly home above.
We sent you each a memory of our undying love.
After all, love is a gift more precious than pure gold.
It was always most important in the stories Jesus told.
Please love and keep each other, as our Father said to do.
For we can't count the blessing or love he has for each of you.
So have a Merry Christmas and wipe away that tear.
Remember, we're spending Christmas with Jesus Christ this year.
MAY EACH FAMILY HAVE A VERY MERRY CHRISTMAS...
Paula Corbitt (mom to Riley NPC)
[Dec 30, 2008 mem]
LOVE AND GO ON
You can shed tears that they have gone
Or you can smile because they have lived.
You can close your eyes and pray they'll come back
Or you can open your eyes and see all that they've left.
Your heart can be empty because you can't see them
Or you can be full of the love you shared.
You can turn your back on tomorrow and live for yesterday
Or you can be happy for tomorrow because of yesterday.
You can remember them and only that they've gone
Or you can cherish their memory and let it live on.
You can cry and close your mind, be empty and turn your back
Or you can do what they'd want
Smile, open your eyes, love and go on
In Loving Memory of Luke Daniel Liegghio
by Enio Liegghio (Luke's Dad)
Do not cry for me as I am not here...
The sun is my smile,
The stars are my eyes,
The wind is my touch,
The rainbow is my endless love for you.
-- Luke

Luke Liegghio, NPC
May 5, 1997 to June 10, 2005
[May 27, 2008]
In Loving Memory of Damon Eli Cardinal
Submitted by Elsa Hudson (Damon's Mom)
God saw you getting tired
When a cure was not to be,
So He put His arms around you,
And whispered "Come with Me."
A golden heart stopped beating
Your gentle hands at rest
God broke my heart and proved to me
He only takes the best!
In tears I saw you fading
I watched you drift away
My heart was almost broken
You fought so hard to stay.
But when I saw you sleeping
In peace and free from pain
I did not wish you back
To suffer that again.
So keep your arms around him, Lord
And give him special care
Make up for all the moments
When life seemed so unfair.
So many times I needed you
So many times I cried
If loving could have saved you
You would have never died.
Damon Cardinal, NPA
December 26, 2006 to April 16, 2008
[May 27, 2008]
