Foundation News:
Foundation NewsLine......Stay informed via these foundation updates.
Upcoming and Recent Awareness and Fund Raising Events
NNPDF 16th Annual Family Support and Medical Conference ~ Atlanta, Georgia ~ July 31 - August 3, 2008. Family Host: Jimmy and Melissa King in honor of Lee.
Research News & Announcements:
Chemical chaperone could open door for treatment of neurological disorder.
Miglustat
improves or stabilizes effects of NPC - Year
1 results
NNPDF
partners with UCSF to conduct NPD research
Enzyme
replacement clinical trial for Niemann-Pick
Type B
Family Resources & Support:
NEW BOOKLET-Understanding Niemann-Pick Disease Type C and its potential treatments.
State-specific
resources to help NPD families
Pictures
from the NNPDF Family Conference

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