Foundation News:
Foundation NewsLine......Stay informed via these foundationwebsite & announcement updates.
Upcoming and Recent Awareness and Fund Raising Events
October 2008 7th Annual NPD Awareness Month.....How can you get involved?
Research News & Announcements:
Mayo Clinic featuring Dr Marc Patterson talking about Niemann-Pick Disease Type C.
Cross-sectional Survey Study of the Natural History of Niemann-Pick Disease Type B
Chemical chaperone could open door for treatment of neurological disorder.
Miglustat
improves or stabilizes effects of NPC - Year
1 results
Family Resources & Support:
NEW BOOKLET-Understanding Niemann-Pick Disease Type C and its potential treatments.
State-specific
resources to help NPD families
NEW POSTINGS ~ Photos
from the 2008 NNPDF Family Conferene in Atlanta, Georgia

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