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This website was updated on: January 28th, 2008

Promoting Research &
Supporting Families

The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide support services for individuals and families affected by NPD. Our Vision...is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.

A message from Barb Vorpahl, NNPDF Chair (click here)

Foundation News:

Foundation NewsLine......Stay informed via these foundation updates.

Upcoming and Recent Awareness and Fund Raising Events

NNPDF 16th Annual Family Support and Medical Conference ~ Atlanta, Georgia ~ July 31 - August 3, 2008.  Family Host:  Jimmy and Melissa King in honor of Lee.

Research News & Announcements:

Chemical chaperone could open door for treatment of neurological disorder.

Miglustat improves or stabilizes effects of NPC - Year 1 results

NNPDF partners with UCSF to conduct NPD research

Enzyme replacement clinical trial for Niemann-Pick Type B

Family Resources & Support:

NEW BOOKLET-Understanding Niemann-Pick Disease Type C and its potential treatments.

State-specific resources to help NPD families

Pictures from the NNPDF Family Conference

       

 

 NNPDF Family Conference Update