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This website was updated on: July 29th, 2008

Promoting Research &
Supporting Families

The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide support services for individuals and families affected by NPD. Our Vision...is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.

A message from Barb Vorpahl, NNPDF Chair (click here)

Foundation News:

Foundation NewsLine......Stay informed via these foundationwebsite & announcement updates.

Upcoming and Recent Awareness and Fund Raising Events

October 2008 7th Annual NPD Awareness Month.....How can you get involved?

Research News & Announcements:

Mayo Clinic featuring Dr Marc Patterson talking about Niemann-Pick Disease Type C.

Cross-sectional Survey Study of the Natural History of Niemann-Pick Disease Type B

Chemical chaperone could open door for treatment of neurological disorder.

Miglustat improves or stabilizes effects of NPC - Year 1 results

Family Resources & Support:

NEW BOOKLET-Understanding Niemann-Pick Disease Type C and its potential treatments.

State-specific resources to help NPD families

NEW POSTINGS ~ Photos from the 2008 NNPDF Family Conferene in Atlanta, Georgia

       

 

             Marc C. Patterson, M.D.

Mayo Clinic Podcast featuring
Dr Marc Patterson speaking
about Niemann-Pick Type C.

race 4 ty